Ismael Update!

Hello dear Friends of Ismael,

It’s been almost three months since Ismael suddenly lost his vision. In looking back at our prior updates, many things have changed substantially (for the better!) – two things that haven’t changed are Ismael’s incredible attitude towards this whole experience and the fact that the doctors still do not know what caused this. They know it was NOT trauma, congenital, genetic, virus, bacteria, parasite, infection, etc…Ismael is a mystery! I asked the lens specialist today if he’d ever seen this before and he said a couple times, and both times it never happened again to those patients – good to hear.

Since our last writing, Ismael has been to multiple eye doctors: retinal specialists, pediatric opthamologists, oculists and today he saw a lens specialist. He sees one specialist for his left eye (operated eye) and one specialist for his right eye (non-operated eye that still has blood) and everyone loves him. He is an incredible patient – very cooperative and sweet (everyone wants to take him home with them).

Over the last month, Ismael has been regaining his vision little by little. It has been a slow process but steady progress has been made. Two weeks ago he got special glasses to act in place of a lens in his left eye (where they had to remove the damaged lens during surgery). The lens on the glasses is extremely thick and they said it may cause headaches, dizziness and malaise – but Ismael has worn those glasses without complaint every day, has adjusted well – and is actually able to see fairly well with them. This is incredible (a miracle?), given that that eye was 100% “gone” before the surgery. The lens specialist today said that he recommends NOT replacing the lens with a permanent lens implant, maybe ever, for a couple of reasons – instead he recommended a special contact lens that he would only have to change once a week – so that will be the next step for Ismael’s left eye – he will again need to adjust to the contact lens and they will adjust the strength, etc. each time he goes in for a check-up.

The RIGHT eye (non-operated eye) has improved dramatically spontaneously and Ismael is able to see pretty well! Apparently the blood has been subsiding little by little over the last 3 months and the doctor would like to wait another month to see if surgery is necessary – at this point he feels like it probably ISN’T necessary. This is really great news! In general, Ismael is happy, though he has certainly gone through ups and downs. He loves having visits from friends and family so keep it up! He is still receiving one hour of homeschooling per day, which he loves, with Lori Kearney. Mr. Jones has come to his house a couple times to play the banjo and so has Laurie the music teacher from Main Street. We hope that he’ll be able to join his class periodically over the next few final weeks of school.

Sooooo, I think all of your good wishes, thoughts and prayers have really helped the Gomez family get through this. It’s still going to be a journey, though the future is bright (literally) for Iso.

Thank you to all of you for your kindness, love and generosity. This community has truly rallied and people continue to be so generous to this beautiful family – it has been amazing and inspiring to see.

Posted in Rants & Raves

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